SA¹ú¼Ê´«Ã½

Sunday 22 December 2024
Salisbury Foundation Trust

FOI_6752

Internal Reference Number: FOI_6752

Date Request Received: 23/08/2022 00:00:00

Date Request Replied To: 31/08/2022 00:00:00

This response was sent via: By Email

Request Summary: Request on clotting disorders

Request Category: Researcher

 
Question Number 1:
How many patients has your trust treated (for any medical condition) in the past 3 months with the following drugs:

• Alphanate

• Alprolix

• BeneFIX

• HaemateP

• Idelvion

• Refixia

• Rixubis

• Veyvondi

• Voncento

• Wilate

• Willfact
 
Answer To Question 1:
Alphanate 0
Alprolox 0
BeneFIX 0
HaemateP 0
Idelvion 0
Refixia 0
Rixubis 0
Veyvondi 0
Voncento <5
Wilate 0
Willfact 0
 
Question Number 2:
How many patients have been treated in the past 3 months with:

• Gene therapy for Haemophilia B ONLY

• Desmopressin for Von Willebrand Disease ONLY

• Tranexamic Acid for Von Willebrand Disease ONLY
 
Answer To Question 2:
Data for May, June and July 22

Gene therapy for Haemophilia B ONLY - This is not offered at Salisbury Hospital. This would be issued by Basingstoke Hospital.

Desmopressin for Von Willebrand Disease ONLY - 0

Tranexamic Acid for Von Willebrand Disease ONLY - 0
 
Question Number 3:
Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment:

• During surgery

• On demand to treat bleeding episodes
 
Answer To Question 3:
N/A - 0 patients treated with Veyvondi in the last 3 months.
 
Question Number 4:
How many patients are registered with your Haemophilia Centre for

• Von Willebrand Disease – adult patients (age 18 or above)

• Von Willebrand Disease – paediatric patients (age 17 or under)

• Haemophilia B (any age)
 
Answer To Question 4:
• Von Willebrand Disease – adult patients (age 18 or above) - 19

• Von Willebrand Disease – paediatric patients (age 17 or under) - <5

• Haemophilia B (any age) - <5
 
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