SA¹ú¼Ê´«Ã½

Friday 27 December 2024
Salisbury Foundation Trust

FOI_6962

Internal Reference Number: FOI_6962

Date Request Received: 13/01/2023 00:00:00

Date Request Replied To: 27/01/2023 00:00:00

This response was sent via: By Email

Request Summary: Epilepsy Treatment

Request Category: Private Individuals

 
Question Number 1:
I would like to please request the following information, with regards to treatment of Epilepsy in your trust/ board.

In the last 12 months of available data:


a) What number of unique patients have been treated for Lennox-Gastaut syndrome, Dravet Syndrome and Tuberous Sclerosis Complex? Please give answers for each condition separately.

b) For each indication (Lennox-Gastaut syndrome, Dravet Syndrome and Tuberous Sclerosis Complex), what number of these have been treated in a paediatric environment?
 
Answer To Question 1:
a& b, Paediatrics -
Dravet <5 patients,
TS complex 3<5 patients,
Lennox -gastaut 0 patients

 
Question Number 2:
How many patients have been treated with Epidyolex in a paediatric environment?
 
Answer To Question 2:
<5 patients have been treated with epidyolex (cannabidiol) in a paediatric environment. These patients are prescribed the cannabidiol by the Southampton paediatric neurology team - this is nationally recorded through the blueteq system
 
Question Number 3:
Can you please detail which NHS Trusts/ Health Boards these patients have been referred from?
 
Answer To Question 3:
<5 patients are under the care of Southampton paediatric neurology
 
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