Internal Reference Number: FOI_6962
Date Request Received: 13/01/2023 00:00:00
Date Request Replied To: 27/01/2023 00:00:00
This response was sent via: By Email
Request Summary: Epilepsy Treatment
Request Category: Private Individuals
Question Number 1: I would like to please request the following information, with regards to treatment of Epilepsy in your trust/ board. In the last 12 months of available data: a) What number of unique patients have been treated for Lennox-Gastaut syndrome, Dravet Syndrome and Tuberous Sclerosis Complex? Please give answers for each condition separately. b) For each indication (Lennox-Gastaut syndrome, Dravet Syndrome and Tuberous Sclerosis Complex), what number of these have been treated in a paediatric environment? | |
Answer To Question 1: a& b, Paediatrics - Dravet <5 patients, TS complex 3<5 patients, Lennox -gastaut 0 patients | |
Question Number 2: How many patients have been treated with Epidyolex in a paediatric environment? | |
Answer To Question 2: <5 patients have been treated with epidyolex (cannabidiol) in a paediatric environment. These patients are prescribed the cannabidiol by the Southampton paediatric neurology team - this is nationally recorded through the blueteq system | |
Question Number 3: Can you please detail which NHS Trusts/ Health Boards these patients have been referred from? | |
Answer To Question 3: <5 patients are under the care of Southampton paediatric neurology | |
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Our staff at SA¹ú¼Ê´«Ã½ Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.