Internal Reference Number: FOI_6971
Date Request Received: 17/01/2023 00:00:00
Date Request Replied To: 25/01/2023 00:00:00
This response was sent via: By Email
Request Summary: The diagnosis and treatment of Spinal Muscular Atrophy
Request Category: Companies
| Question Number 1: How many patients have a current diagnosis for Spinal Muscular Atrophy (ICD-10 Code G12.0, G12.1, G12.8 and G12.9) at your trust? | |
| Answer To Question 1: Answer: 17 - For patients who have ever been diagnosed with the supplied ICD-10 codes and who haven鈥檛 died (according to local records). | |
| Question Number 2: How many patients have been treated in the last 4 months (September to December 2022) with the following products: Evrysdi (Risdiplam) - total patients Spinraza (Nusinersen) - total patients Zolgensma (Onasemnogene) - total patients Evrysdi (Risdiplam) - new* patients Spinraza (Nusinersen) - new* patients Zolgensma (Onasemnogene) - new* patients *new patients are defined as patients who were not treated with any of Spinraza (Nusinersen), Evrysdi (Risdiplam) or Zolgensma (Onasemnogene) in the previous 4-month period (May to August 2022). | |
| Answer To Question 2: Answer = 0 | |
| Question Number 3: Of the total patients treated in the last 4 months (September to December 2022) with Evrysdi (Risdiplam), please provide the number of patients that were treated with Spinraza (Nusinersen) in the previous 4 months (May to August 2022). | |
| Answer To Question 3: Answer = 0 | |
| Question Number 4: Of the total patients treated in the last 4 months (September to December 2022) with Zolgensma (Onasemnogene), please provide the number of patients that were treated with Spinraza (Nusinersen) in the previous 4 months (May to August 2022). | |
| Answer To Question 4: Answer = 0 | |
| Question Number 5: How many patients have been treated with Zolgensma (Onasemnogene) in the last 12 months (January to December 2022)? | |
| Answer To Question 5: Answer = 0 | |
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