SA¹ú¼Ê´«Ã½

Sunday 22 December 2024
Salisbury Foundation Trust

FOI_7361

Internal Reference Number: FOI_7361

Date Request Received: 08/08/2023 00:00:00

Date Request Replied To: 30/08/2023 00:00:00

This response was sent via: By Email

Request Summary: Haemophilia B and Von Willebrand Disease

Request Category: Companies

 
Question Number 1:
How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs:

• Alphanate
• Alprolix
• BeneFIX
• HaemateP
• Idelvion
• Refixia
• Rixubis
• Veyvondi
• Voncento
• Wilate
• Willfact
 
Answer To Question 1:
Alphanate 0
Alprolox 0
BeneFIX <5
HaemateP 0
Idelvion 0
Refixia 0
Rixubis 0
Veyvondi 0
Voncento <5
Wilate 0
Willfact 0
 
Question Number 2:
How many patients have been treated in the past 3 months with:

• Gene therapy for Haemophilia B ONLY
• Desmopressin for Von Willebrand Disease ONLY
• Tranexamic Acid for Von Willebrand Disease ONLY
 
Answer To Question 2:

The Trust does not do gene therapy
Desmopressin 0
TA 0
 
Question Number 3:
Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment:

• During surgery
• On demand to treat bleeding episodes
 
Answer To Question 3:

N/A
 
Question Number 4:
Of the patients that were treated with Voncento in the past 3 months, how many patients received treatment:

• During surgery
• On demand to treat bleeding episodes
 
Answer To Question 4:

On demand bleeding <5
 
Question Number 5:
How many patients are registered with your trust for the following diseases:

• Haemophilia B
• Von Willebrand Disease
• Von Willebrand Disease - paediatric patients (age 17 or under)
 
Answer To Question 5:

Haemophilia B <5
Von Willebrand Disease 21
Von Willebrand Disease Paeds <5
 
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