Internal Reference Number: FOI_7530
Date Request Received: 08/11/2023 00:00:00
Date Request Replied To: 23/11/2023 00:00:00
This response was sent via: By Email
Request Summary: Request on Rare Diseases
Request Category: Companies
| Question Number 1: In the past 12 months, how many patients have been admitted as inpatients for each of the following conditions* (primary or secondary diagnosis)? 鈥� Adult Onset Stills Disease (AOSD) 鈥� ICD10 code M06.1 鈥� Juvenile Arthritis with Systemic Onset (SJIA) 鈥� ICD10 code M08.2 鈥� Periodic Fever Syndromes including Familial Mediterranean Fever (FMF), Tumor Necrosis factor Associated Periodic Syndromes (TRAPS) or Melvonate Kinase Deficiency (MKD) 鈥� ICD10 code E85.0 鈥� Cryoprin-associated Periodic Syndromes (CAPS) 鈥� ICD10 code not available *In case you do not treat any condition, please provide the name of the trust you refer these patients to. | |
| Answer To Question 1: Please see our response to all parts of this FOI in the Excel spreadsheet provided. To accompany this answer to question 1 please also see the documents listed below:  11797 - FOI_7530 - Request on Rare Diseases FOR ISSUE.xlsx | |
| Question Number 2: How many patients has your trust/health board treated with Anakinra (Kineret) in the past 12 months, for each of the following: 鈥� Any medical condition 鈥� Rheumatoid Arthritis 鈥� Adult Onset Stills Disease (AOSD) 鈥� Juvenile Arthritis with Systemic Onset (SJIA) 鈥� Periodic Fever Syndromes (FMF, TRAPS or MKD) 鈥� Cryoprin-associated Periodic Syndromes (CAPS) | |
| Answer To Question 2: See attachment in Q1 for response | |
| Question Number 3: How many patients has your trust/health board treated with Canakinumab (Ilaris) in the past 12 months, for each of the following: 鈥� Any medical condition 鈥� Adult Onset Stills Disease (AOSD) 鈥� Juvenile Arthritis with Systemic Onset (SJIA) 鈥� Periodic Fever Syndromes (FMF, TRAPS or MKD) 鈥� Cryoprin-associated Periodic Syndromes (CAPS) | |
| Answer To Question 3: See attachment in Q1 for response | |
| Question Number 4: How many patients has your trust/health board treated with Tocilizumab in the past 12 months, for each of the following: 鈥� Any medical condition 鈥� Adult Onset Stills Disease (AOSD) 鈥� Juvenile Arthritis with Systemic Onset (SJIA) 鈥� Periodic Fever Syndromes (FMF, TRAPS or MKD) 鈥� Cryoprin-associated Periodic Syndromes (CAPS) | |
| Answer To Question 4: See attachment in Q1 for response | |
| Question Number 5: How many patients has your trust/health board treated with Etanercept in the past 12 months, for each of the following: 鈥� Any medical condition 鈥� Adult Onset Stills Disease (AOSD) 鈥� Juvenile Arthritis with Systemic Onset (SJIA) 鈥� Periodic Fever Syndromes (FMF, TRAPS or MKD) 鈥� Cryoprin-associated Periodic Syndromes (CAPS) | |
| Answer To Question 5: See attachment in Q1 for response | |
| Please see Attachments: | |
| To return to the list of all the FOI requests please click here | |
Our staff at SA国际传媒 Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
