Internal Reference Number: FOI_7601
Date Request Received: 07/12/2023 00:00:00
Date Request Replied To: 02/01/2024 00:00:00
This response was sent via: By Email
Request Summary: Haemophilia B and Von Willebrand Disease
Request Category: Researcher
| Question Number 1: Could you please provide answers to the following five questions related to the incidence and treatment of Haemophilia B and Von Willebrand Disease? How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs: 鈥� Alphanate 鈥� Alprolix 鈥� BeneFIX 鈥� HaemateP 鈥� Idelvion 鈥� Refixia 鈥� Rixubis 鈥� Veyvondi 鈥� Voncento 鈥� Wilate 鈥� Willfact | |
| Answer To Question 1: Voncento 鈥� <5 | |
| Question Number 2: How many patients have been treated in the past 3 months with: 鈥� Gene therapy for Haemophilia B ONLY 鈥� Desmopressin for Von Willebrand Disease ONLY 鈥� Tranexamic Acid for Von Willebrand Disease ONLY | |
| Answer To Question 2: Gene Therapy for Haemophilia B 0 Desmopressin for VWD 0 Tranexamic Acid for VWD - <5 | |
| Question Number 3: Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment: 鈥� During surgery 鈥� On demand to treat bleeding episodes | |
| Answer To Question 3: Veyvondi during Surgery 0 Veyvondi on demand 0 | |
| Question Number 4: Of the patients that were treated with Voncento in the past 3 months, how many patients received treatment: 鈥� During surgery 鈥� On demand to treat bleeding episodes | |
| Answer To Question 4: Voncento during surgery <5 Voncento on demand <5 | |
| Question Number 5: How many patients are registered with your trust for the following diseases: 鈥� Haemophilia B 鈥� Von Willebrand Disease 鈥� Von Willebrand Disease - paediatric patients (age 17 or under) | |
| Answer To Question 5: Haemophilia B <5 VWD 17 VWD (UNDER 17) 0 | |
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