Internal Reference Number: FOI_8087
Date Request Received: 07/08/2024 00:00:00
Date Request Replied To: 20/08/2024 00:00:00
This response was sent via: By Email
Request Summary: Haemophilia B and Von Willebrand Disease
Request Category: Researcher
| Question Number 1: Could you please provide answers to the following five questions related to the incidence and treatment of Haemophilia B and Von Willebrand Disease? Q1. How many patients has your Trust treated (for any medical condition) in the past 3 months with the following drugs: • Alphanate • Alprolix • BeneFIX • HaemateP • Idelvion • Refixia • Rixubis • Veyvondi • Voncento • Wilate • Willfact | |
| Answer To Question 1: • Alphanate - 0 • Alprolix -0 • BeneFIX - 0 • HaemateP - 0 • Idelvion - 0 • Refixia - 0 • Rixubis - 0 • Veyvondi - <5 • Voncento - 0 • Wilate - 0 • Willfact - 0 | |
| Question Number 2: How many patients have been treated in the past 3 months with: • Gene therapy for Haemophilia B ONLY • Desmopressin for Von Willebrand Disease ONLY • Tranexamic Acid for Von Willebrand Disease ONLY | |
| Answer To Question 2: Gene therapy for Haemophilia B ONLY - 0 • Desmopressin for Von Willebrand Disease ONLY - 0 • Tranexamic Acid for Von Willebrand Disease ONLY - <5 | |
| Question Number 3: Of the patients that were treated with Veyvondi in the past 3 months, how many patients received treatment: • During surgery • On demand to treat bleeding episodes | |
| Answer To Question 3: During surgery - 0 • On demand to treat bleeding episodes - <5 | |
| Question Number 4: Of the patients that were treated with Voncento in the past 3 months, how many patients received treatment: • During surgery • On demand to treat bleeding episodes | |
| Answer To Question 4: During surgery - 0 • On demand to treat bleeding episodes - 0 | |
| Question Number 5: How many patients are registered with your trust for the following diseases: • Haemophilia B • Von Willebrand Disease • Von Willebrand Disease - paediatric patients (age 17 or under) | |
| Answer To Question 5: • Haemophilia B = 11 • Von Willebrand Disease - total patients = 95 • Von Willebrand Disease - paediatric patients (age 17 or under) = 8 | |
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Our staff at SA¹ú¼Ê´«Ã½ Hospital have long been well regarded for the quality of care and treatment they provide for our patients and for their innovation, commitment and professionalism. This has been recognised in a wide range of achievements and it is reflected in our award of NHS Foundation Trust status. This is afforded to hospitals that provide the highest standards of care.
