Internal Reference Number: FOI_8380
Date Request Received: 15/01/2025 00:00:00
Date Request Replied To: 28/01/2025 00:00:00
This response was sent via: By Email
Request Summary: Spinal Muscular Atrophy
Request Category: Researcher
| Question Number 1: We have a freedom of information request related to the diagnosis and treatment of Spinal Muscular Atrophy. Your answers to the following questions would be greatly appreciated. How many patients have a current diagnosis for Spinal Muscular Atrophy (ICD-10 Code G12.0, G12.1, G12.8 and G12.9) at your trust? | |
| Answer To Question 1: 20 patients | |
| Question Number 2: How many patients have been treated in the last 4 months (September to December 2024) with the following products: 鈥� Evrysdi (Risdiplam) - total patients 鈥� Spinraza (Nusinersen) - total patients 鈥� Zolgensma (Onasemnogene) - total patients 鈥� Evrysdi (Risdiplam) 鈥� new* patients 鈥� Spinraza (Nusinersen) 鈥� new* patients 鈥� Zolgensma (Onasemnogene) 鈥� new* patients *new patients are defined as patients who were not treated with any of Spinraza (Nusinersen), Evrysdi (Risdiplam) or Zolgensma (Onasemnogene) in the previous 4-month period (May to August 2024). | |
| Answer To Question 2: Response from Pharmacy: Pharmacy do not stock and 聽have not issued any of the 3 treatments listed in this FOI Response from Spinal: We do not use any of these medications. It is prescribed by Neurologists. | |
| Question Number 3: Of the total patients treated in the last 4 months (September to December 2024) with Evrysdi (Risdiplam), please provide the number of patients that were treated with Spinraza (Nusinersen) in the previous 4 months (May to August 2024). | |
| Answer To Question 3: Response from Pharmacy: Pharmacy do not stock and 聽have not issued any of the 3 treatments listed in this FOI | |
| Question Number 4: Of the total patients treated in the last 4 months (September to December 2024) with Zolgensma (Onasemnogene), please provide the number of patients that were treated with Spinraza (Nusinersen) in the previous 4 months (May to August 2024). | |
| Answer To Question 4: Response from Pharmacy: Pharmacy do not stock and have not issued any of the 3 treatments listed in this FOI | |
| Question Number 5: How many patients have been treated with Zolgensma (Onasemnogene) in the last 12 months (January to December 2024)? | |
| Answer To Question 5: Response from Pharmacy: Pharmacy do not stock and 聽have not issued any of the 3 treatments listed in this FOI | |
| To return to the list of all the FOI requests please click here |
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